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Browse by month
2007: August / July / June / May / April / March / February / January / 2006: December / November / October / All months together |
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September 15... We are back!! Summer here in Rome was hot, still very hot even if everyone think that summer is over. Ja doing better and better and we plan to come back home as soon is possible and continue Ja's treatment in Vancouver. We are looking for transportation just now, but we trying to find a private company and small plane, and avoid public airport and thousand of peoples around Ja, because her immune system still low and we must have allots of precaution respect at Ja's health. If anyone that read this update, have a friend, a company, a name or any idea where we must go or talk, don't hesitate to e-mail or phone us. The sooner,... the better... Thank you to all the friends, family and helpers that have been with us all this time, and still there for the time we still need to go.
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August 20,21... The Rome update is on "holidays" from now to September 15. Family, Friends and supporters, be patient... :)
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August 17,18,19... The Rome update still on holydays, "The August Italian wave"...:)
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August 16... The Rome update on holydays...:)
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August 15... Rome Holyday
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August 14... Another round of today roses... Pictures click here..
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August 13... Over...
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August 12... Over...
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August 11... Over...
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August 10... Finally!!!!!! Today rain in Rome for 20 minutes after 93 days. For somebody from Vancouver where rain is the normal happen year round, is very surprising see the rain after 3 month... :)
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August 9... Over...
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August 8... Over...
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August 7... Italy is close... :) Every store close for holidays, 2 weeks, 3 weeks, 4 weeks, and everyone go to some place... they really respect their holydays and nothing can be more important in August... The city looks empty, with allots of tourist of course.... The Rome update are on holydays too... No news, good news... Few more pictures from the last full moon on July ... Pictures click here..
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August 6... Over...
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August 5... Over...
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August 4... Over...
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August 3... Well this month can be the same or not for Ja, ups and downs... We don't really know in the stage we are just now. So I guess we going to let Ja in peace, except some exceptional news, and I going to dedicate the page to have some fun. For example... last full moon take few pictures, then take few more moving the camera and final add some photoshop for fun and here is the result... Pictures click here..
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August 2... I still don't have time for the updates. During this period, Ja will remaining the same from the last update...:)
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August 1st... Sorry run out time for the updates.
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July 31... day after Full moon.... and the moon still full and beautiful like yesterdays We arrive at the end of another month. So many, so long and so slow everything. Ja is happy and like to thank you again the continue support to all the friends and family that keeping holding her on top of the good waves of life. Pictures click here..
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Was a beautiful beautiful full moon... Pictures click here..
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July 30.. Full moon....
...just out to take a picture of tonight moon, in this one, we wish for red cells, white cells and platelets... :)
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July 29.... 9 PM, Italian time... ...and Ja just go back to the clinic. That was the good news. Ja was home here in Rome from Saturday afternoon to Sunday evening. We really enjoy this precious time after 3 month in the isolation room. We have eat and laugh and was to short, but incredible emotional for the 4 of us. Hope this is the beginning of the way back to home.... We like to thank you to all the prayers and the full moon wishes about Ja been home for this moon, because she did it...
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July 28.. midnight Italian time... Today 34 and lucky us, tomorrow 33 degrees hot... in Rome feels like 55... Ja have a very special day, no many changes, neither ups and downs...nice. Saturday close for all of us very good, and we save the best news for tomorrow night...
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July 27... past midnight Italian time... Yesterday is over and Ja was feeling better than day before, what we can call a improvement in general. Still Ja don't have arrive yet to the self production of hemoglobin and platelets, and the white cells are not enough to start to fight all those bugs in her body. She have less fevers, and the meaning is that something working in her favor... We like to wish a good weekend to everyone... :) (Next full moon is on Monday 30)
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July 26... midnight Italian time One more day, another hot day in Rome, for Ja, the temperature in her room is perfect. The was not the best day, but is over. She have good meals today, and now is sleeping.. See what tomorrow give to all of us... Be ready for the weekend and the full moon.. :)
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July 25... past midnight Italian time Well, yesterday I (Pancho) follow sleep just when I start the updates, so I think,.. I do "mañana", and mañana was going to fast and here I'm now... Ja is dealing with few bacteria's, staff and herpes and fungus infections, all this is consequence of the lost of her immune system during the transplant. She receive allot of medications, and is hard to know witch one is working in her favor and witch one are not. What I meaning, is because everyone of those drugs have so many side effects that sometime can harm more than cure. The care at the clinic is very good, tests, controls, X Rays, etc, etc are happen everyday. Nurses and doctors are constantly helping Ja and trying to get her back home as soon is possible, but Ja still need to get over all this things first, and is not so easy. The progress is slow, we only can go day by day... and is a hard thing to do... :)
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July 24... before midnight Italian time
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July 23... past midnight Italian time Definitely hot in Rome... Ja is doing good. I don't have more news... News coming soon
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July 22... midnight Italian time... The weekend is over, and was a nice weekend we can said. Ups and downs with the fever, looks like Ja immune system is better, and her appetite too... :) The moon over the mountains start to look nice. I remember that I have few pics from the last full moon on June 29... Pictures click here..
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July 21... midnight Italian time... Week end in Rome... everything slow down in Italy, except Ja, she still active and better. That it... more news and pictures soon. To everyone, "have a nice week end"... :)
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July 20... yesterday updates... After reinstall my Windows XP and etc etc, it was to late for the updates, so sorry to everyone, no panic, is just my computer.. :) Ja is doing better, walking allot, eating more and the fever start to back up, but not disappear yet. The weather in Rome is hot hot hot... (37 degrees), and don't have rain for the last 45 days, the roses still growing and here are few pics from yesterday... Pictures click here..
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July 19... midnight Italian time... The progress from yesterday was back a little. From the morning Ja don't have feel so good, and was a very slow day to the last hours before going to sleep. We moving into Friday the 20, and I can guess we going to have another week-end at the Tor Vergata. In any situation and in any condition. Ja is beautiful...
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July 18... midnight Italian time... We all expend sometime with Ja today, also yesterday, talking and make jokes, and feel the progress on Ja. The number are in a balance period. Needs more days like today..:)
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July 17.. past midnight Italian time... Yesterday tarararararirara....tarara rara rira...(Beatles....:) Right, Ja progressing, eating good and look happy... The update for yesterday... tarararararirara....tarara rara rira...
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July 16.. past...past midnight Italian time... Updates delay... my computer run like Pancho.. :) :).... Ja still in the clinic, with good and bad periods. Because her immune system still low, bacteria's and virus love the environment and new problems arriving everyday to Ja. Still her number moving up and down, and in general Ja try very hard to overcome all this situation that even the doctors consider "never happens before", and trying very hard to find out what's going on... Nothing have work like on the originals protocol transplant program, but, even with all this adversities, we are confident that things going to get in the right direction. Always thank you to the online and non online supporters...
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July 15.. past midnight Italian time... Yesterday was ok. Ja is ok. Everything is ok... :) Any picture...a pizza box...
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July 14.. midnight Italian time... Again for Ja, one more day with all the up and downs of the journey. Ja has past the day ok. Craig bring some barbecue food and Ja really enjoy. We are ready on Sunday, waiting for the coming week and maybe the news about Ja going home... cross you fingers .. :)
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July 13.. past midnight Italian time... Ja have another nice and smooth day.
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July 12... past midnight Italian time... Again, yesterday was another regular day for Ja. We have dinner at "The Tor Vergata In", and sorry I forgot to tell yesterday that is how we call "Ja's isolation room", I guess some friends get the impression that we have eat at the Restaurant in the Hospital... Wish... Is ready Friday in Rome, and hope everyone have a good week-end.
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July 11...midnight Italian time... Day is over and we can said was a better day for Ja. We (Ja and I, Pancho ) we have dinner together at the "Tor Vergata In" on the 9 Floor, and was delicious... The view excellent, the menu enough good, we eat all the plates and I have cappuccino for after super... like I said a good day in general. Just receive a picture from last February at the Olimpo Dance school in Rome with friends of the hip hop group dancers. Here, Ja and Maria Rosaria. ( to see the video, look at February 17, 2007)
tutte le volte che penso a lei mi viene da sorridere....
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July 10... past midnight Italian time... I try to imagine my self, knowing Ja and be thousands of Kilometers apart, and like to know how Ja doing today, or yesterday, and I expect a good news, because a good news about Ja make my day maybe better, maybe different, maybe happier... Ok,... the news for yesterday, is no news..., so we know, the meaning of no news, is good news. Some of the test yesterday showing better results, still,.. the fever was coming and go for periods, and we are very happy that yesterday is over here in Italy...:) For change, a home made song.. to listen click here
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July 9... before midnight Italian time... Ja have a classic day we can said, she eat good and exercise, numbers going up, and she feel better and better everyday. Thank you everyone to write to us. Friends wrote: ------- We go on your website every morning and evening...We are walking along side you.... ------- Our thoughts and prayers are with you always... ------- At Church this morning we were reminded again to keep you in our prayers... ------- Love and muchos abrazos...
------- I miss all you guys, talk to you soon! -------
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July 8... past midnight Italian time... Ja is in more establish condition latest, with a great appetite and few walking around daily. If she keeping this pace, we going to have her back home soon... Grandma Joan left with us few pictures, like Anita and Rod. Is the same Rome, the same day, and of course, everything looks similar, but...different camera.. :) Pictures click here..
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July 7... past midnight Italian time... Saturday in Rome, super hot and everybody is out for summer. Ja is also out for a walk, out her room and inside the clinic, and sure make her feel very good. The scale of appreciations...:) . Ja still receiving a lots of medications, dealing with fevers and reactions. Overall she improves everyday and keep the faith. Ja's uncle Rod and wife Anita visited us in Rome last week, here are few pictures from them. The same Rome, different camera, angles and time... Pictures click here..
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July 6... before midnight Italian time... Today for Ja was like few of the latest days...
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July 5... midnight Italian time... Ja is doing better everyday. Today she decide to focus in a super healthy diet to get out all the bugs... :) Sound good...
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July 4... midnight Italian time... Before Ja going to sleep tonight, I ask if was any special to write for today...? and she mention, the mango was good... and the orange juice too... and she laugh. For the ones that know Ja, she start to feel very Ja. At the moment, Ja is very relaxing even if she still need to dealing with the fever two or three times a day, and with the increasing of cells in her body. The tip is that on four or five days the fever might stop.. another "hope" I guess...:) The picture for today...
Just finish to write the update, and look up, thinking if was something more to write, and my desk lamp make this design and the camera was in my desk, so...
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July 3... Afternoon Italian time... Ja's Grandma Joan left this morning back to Vancouver. Was nice to have her visit and we have pictures from her camera... (July 8) For the more important news, Ja's is feeling good, with some fever periods, but in general good. They have find some type of virus-fungus in the self bone marrow witch can be one of the factor of the fever. Is a original type of fungus that many of us we always carry, just for Ja is more strong at the moment. This one craves a very long period of medication to saddle down, and hope the work. In Italy is summer time and still hot. Everybody left on holydays, the city is full of tourists and if you ever can visit Rome... do it, is a place to follow in love with it...
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July 2nd.. Afternoon Italian time... With all the arriving and departs from Rome, I'm behind with the updates. The updates will come, the updates will come ...:):) Ja is doing good, little by little, she try to get back in shape and come home. Anita and uncle Rod flying back home today in the afternoon. They left with us few pictures from the trip... (July 7)
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July 1st.. Happy Birthday Canada, Ja's home land
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June is done.. Here are the last pictures for the rest of the full moon, looks a little mixed, because in between family and friends at home, and driving back and from to the clinic, I have the camera with me.... Thank you to everyone that have write, phone or visit us, help us to go trough few of the difficult moments of June. Ja and Craig, and Sal and Pancho Pictures coming soon.....
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Moon preview in Rome..28/06/07 12:30 AM Pictures click here
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June 30.. from last full moon on June 1st
Jessica
Late afternoon Italian time.... To the ones that wait for good news from Ja, I imagine that all of us, the readers and the writers we have been waiting for a good news... today Ja was out of her room walking inside the clinic for one and halve hour, nice work-out and a really good news... : Still more to come, soon we going to see the moon come out. To listen in the main time... Music click here Just now, arrive to our door Craig and Sue and their daughters Jess and Hanna, friends from Vancouver that last month the have a full moon party for Ja at their house with friends and family, and today we get together here in Rome for the second full moon in this month.
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June 29.. pass midnight Italian time Another day go by and Ja's numbers slowly climb up. She feel good all day, except couple of moments where she have fever and some reactions from platelets. Ja's appetite was good today. We are ready into the full moon day and feelings. We come back with pictures and more comments us soon we can. Thank you again to all the supporters, friends and family that still going with allot of faith towards Ja. We like to wish to everyone a happy full moon!
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June 28.. midnight Italian time And tomorrow Saturday, the Full Moon... looks like yesterday we have a full moon, thinking all around the globe we send to Ja the best of all together healing energy, a month has pass by, and we don't exactly know if the have work or not. I guess, Ja is better now that she was last moon, wonder... if really the help happens....? For yesterday, Ja feel better and better and enjoy the fruit season in Italy. Also Ja's uncle Rod and wife Anita, arrived in Rome to visit us, this full moon going to be very family oriented..:) Another day tomorrow, but is another full moon day, and for this one we hope that the next full moon, Ja watch from the roof of our house... :)
The same rose, day older...
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June 27.. after midnight Italian time...
The same rose from yesterday... the same Ja from yesterday, just a day older... :)
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June 26... before midnight Italian time... Today, 30 degrees hot in Rome!!.. everyone was out with a sweater today....almost ...:) Ja have again a calm day with few moments where the fever climb up, after the medication the fever come down, and in between, she have time for smoothie, a good diner and a movie... I know everything sound good, but still the fever don't walk away. Constantly at the clinic, they perform all type of checking and rechecking of Ja's condition, and even if they find that everything is ok, in this type of transplant, the source of the fever is 50% know and 50% unknown. The first they need is White cells count up to fight any infection, second the production of red cells from the bone marrow, and then the platelets to start a normal functionality of the whole body. Ja is going in this direction, just is a slow process. She feel good overall everything and confident, and we are confident in Ja's life force.
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June 25... midnight Italian time... Today, 40 degrees hot in Rome.. that's hot! Ja's gone up in everything on count number, good!! also eating, drinking, eat more fruits, fever,...all the usual... :) Tomorrow... looks interesting....:)
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June 24... before midnight Italian time... Today, everything drops down on Ja, white cells, red cells and platelet. She still feeling ok, and keep going with the everyday therapy. Here, some info that can help you to see the picture better... In this micro-photo of blood cells, platelets are stained purple. A T-Lymphocyte white cell is stained green, and a Monocyte white cell is stained gold. Red blood cells are red.
hemoglobin
red blood cells
white blood cells
platelets
bone marrow
All this information come from this site Created exclusively for Phoenix5
Ok, is me again.... What you like to know now is the number... Approximately in a person: Normal Red cells counts are 125 to 135 Normal White Cells counts are 6000 to 9000 Normal Platelets counts are 40.000 to 70.000
About Ja, she don't have rich this point yet, but we let you know when the happens... :)
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June 23... pass midnight Italian time... Never be to confident in this process... The fever is back, more infections on their way and more antibiotics and more of everything. Still, Ja feel better and eat better and more everyday. Like after a fast, any fast, first slowly and progressive to eat everything. Ja is at the stage where she feel to eat everything... of course, can't eat everything yet... :) The hope still open... I just realized that Ja start to have fever on May 18, that meaning for the last 35 days she have been fighting all type of fever's...
Lines for Ja... OUCH......such stamina is needed for this healing process---a long hard month HEY??????and no doubt it's really been her lifetime to some degree or other. ------- We are all so touched and grateful to have this experience of sharing the love and support that is for Ja. ------- Hello Ja: I know your Grandmother is there now, hope she is going to be able to see you
Ja's energy cannot be
repressed: if she feels dancing so let it be....
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June 22... midnight Italian time... So far, another good day for Ja. The fever has gone for more than 24 hours...? "hope" that is the break she needed to start the next stage....out the box. Ja's Grandma, Joan ( for the people that know her) she has arrive today in Rome to visit Ja and us. And about the roses, I never have show you the size of the rose trees, here is one picture and I'm 178 cm Pictures click here
Lines for Ja... Don't be afraid to try something new.
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June21... pass midnight... Done!. Ja feel better, the fever is mild enough that Ja's own system start to bring down. Sound good eh? Ja's appetite is improving, good symptom. After so many days of fever, some peace sometime can be very appreciate.. :):)
Lines for Ja... Happy Solstice, Sunshine & Soulshine ------- Sigo muy conectada con JA en mis pensamientos...solo trato de concentrarme en ella desde la bondad, buenos sentimientos, alegria, que todo eso se expanda en ella como las olas en el mar... ------- I “HOPE” the treasure at the end of your rainbow is the cure we’ve all been “ hoping” and praying for ------- We are happy to hear Ja had a better day….keep the faith…every day will be better…stay strong and believe…. ------- May this day be a turn around for you and every moment bring you more strength and healing.
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June20... almost midnight... Another day with a little bit of everything, in general everything looks better and promising. Ja get to eat the first Italian fig, water melon and berry smoothie, what a fest. Exercise as well, very gentile of course. I guess the "hope" still going for the next day. :) I cached a rainbow in the garden..
Pass midnight Italian time... Somebody cross street from us, had fireworks for 45 minutes. Enjoyable, even if is Wednesday night pass midnight. I get few pictures just by the end... Pictures click here
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June 19... almost midnight... Well Ja have a better day, all the hope's from yesterday make us hope again for a better new day full of hope for Ja get it better.... I know the are to many hope's in my writing and is because "hope" never ends... :) The flowers from yesterday... Pictures click here
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June 18... Monday done... Yesterday, Ja get a surgery to put back the central line tubing attach to the main artery. The rest of the day was not so easy after anesthetics, she have pain and because the surgery she don't have the daily medications, the fever come back, and sure was a hard day for her. Is also hard for me to inform all of you that she don't have any easy time. Hope that tonight she can have a good sleep, and hope that tomorrow is another day of hope for Ja, and hope Ja feel better...
The sunset today... Pictures click here
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June 17... Sunday almost done (Italian time) Hope everyone get the idea of the translator. Is not our page, so don't click nothing alls, just translate... :)
Ja's white cell still growing in number and variations, what meaning more affectivity in fight against the infection, and they do. Ja today feel much better. Have few minutes for more roses.. Pictures click here
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June 16 Ja, un poco mejor. Todo bien....tengo problemas con mi computer
pronto mas noticias |
in the menu bar... |
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June 15... ( to the early birds ...:) Finally the identify a virus in Ja's lungs....New therapy is on the way. The midnight update... Yesterday the white cells counts has going up by the evening. Ja have a very similar day that day before, the fever was anticipate more this time so the day in general more under control. Enjoy this power point slide that friends of Ja send from Vancouver. "The logistics" click here
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June 14... ( pass midnight Italian time...) Ok, "Yesterday".. Right, back to Ja's yesterday... Well, soon every specialist in the hospital has check Ja, to be sure she doing good and try to find where this never end fever coming from, because so far, the fever still there and for Ja start to be not so fun...exhausting. Still, in between all this, the numbers going up, and Ja's own bone marrow is growing back. On two week another bone marrow test going to give us the final result, meaning... if the transplant has work or not.
Lines for Ja... Just know that although you can’t see us, we are right beside you always. ------- The amount of emotion that I have invested in your recovery makes me realize how close you still are to my heart -------
We love you, we miss you, and we can't wait to throw a party for you upon
your ------- MUA!!!!!!! -------
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June 13... ( midnight Italian time...) Today, the focus is again on yesterday.. And Ja did it good, except the moments where the fever was up. Overall, the number with some small variations still going plus... Today we expect more results from yesterday tests.... hope for the best
Lines for Ja... I just wanted to let you know that during the full moon last Friday I put on the most inspirational song I could think of and danced for you! ------- Mandale un beso enooorme de nuestra parte y que estamos rezando a conciencia para que se reponga pronto... ------- What a great team around you! I feel like hugging all of you at the same time in one embrace. ------- Amazing how our children can often be stronger than us at times…we are so happy with your good news ------- This website is the first one I read every morning and the tension has been enormous! -------
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June 12 ... Morning Italian time, the dawn Rome on pictures at 5:36 AM Pictures click here
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June 12... ( pass midnight Italian time...) New color in The Rome Update, we moving into another feeling....J Yesterday, was a surprising day because all the number in Ja's cellules counts going up. This meaning that we have hope again, something is growing in Ja physically, ready her spiritual side has developed allot between before the transplant and now J The fever still there.. but is also a omen that a bone marrow start to take place in the body. The graft for bone marrow is around 20 days, today is day 14 and ready some symptoms. Well is not for start to jump around, is more to be meditative and thinking uuhmmm...?
Lines for Ja... I'm ten years old. Your story touched my heart. My mother e-mail was telling Ja to breath in positive energy and breath out negative energy. Well I think that a good sleep always helps when I'm not feeling well so what I recommend is to close your eyes, rest you head and say to yourself "I will be better tomorrow" and continue to do this until you are better. Hopefully this will help and although we have never met I'm hoping that some day we will. You've inspired many people. P.S. will pray for Ja every night. ------- I am just sending love, always thinking of you ------- Enjoy your roses and your garden. Aren’t we blessed to live in such a beautiful world. ------- Scrolling through your journey is humbling to say the least. Your love, your courage, your strength, the support around all of you...is only inspiring. Wishing you only healing days ahead. ------- We are so happy with your good news…I’m sure it is a positive sign that things are going to keep improving ------- I hope you will soon be able to fly like the beautiful butterfly on your website, free from your hospital room that is your cocoon.
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June 11... ( midnight Italian time...) Hi to the Rome Update readers. Midnight is a good time to update the web, so we can talk about yesterday in full..:) And yesterday was a full day again for Ja. The Doctor removed Ja's Central Line; is a small tube attach to a principal artery close to the heart, they use to give the medication and transfusions. They did it because the persistent fever Ja have for few days. The fever still there, but if the line was the cause, the infection must stop in the next 24 hours. So far Ja feel better, eating and her lung infection looks like is almost cure. So far yesterday, was another busy day for Ja.
Lines for Ja... Give thanks for the moment, and pray that another will yet follow. ------- Our garden is filled with Rose bushes. Rose is the queen of flowers and a powerful healer. May the Deva of our roses here on the west coast blend with yours in Roma. ------- Love and hope for brighter days ahead...for the healing of the lovely and beautiful Ja. -------
As I have
watched you grow, I have seen you turn into a fine person and a beautiful
young woman.
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June 10... ( midnight Italian time...) Ready to the next day, Ja still always in recuperation, some days better than others, but overall improves slowly. At this stage, is hard to predict if everything still going in the same direction, but if she do few more days like today, I tell, she is home soon... Sound good eh?, but is hard to predict... :)
Lines for Ja... Believe in magic and wish on stars. Expect the best from life and that's what you'll get. ------- I wear the crystal necklace your parents gave me for my 60th and think of you every day. ------- The moon was beautiful that night. You all make us realize how small the world is. -------
You know who encouraged me to just be me.....Everyday
you are my inspiration...
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What about the roses...? Well, is the first time we have a garden with roses. Roses are symbolism of love... So, for 3 days, on June 6,7,8, I took photos in the morning and in the evening to the same flowers. Incredible, beautiful to see them growing in the same day. You might recognize the changes in some of then in the 3 days period ... Pictures click here
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June 9... (pass midnight Italian time...) The day is finish in Italy... no yet for the other side Canada and USA, so, to the friends that still have few more hour to go for the day, and open this page, we wish you all a nice evening... :):) Ja has pass another more promising day, not without the fever, but more under control. Ja feel cosi cosi, eating and have another smooth day with Sal, nurses and doctors.
Lines for Ja... Just a quick hello to say I love you all and I am thinking about you everyday ------- Whoever is taking those wonderful pictures seems to convey all the love that involves you, Ja. The vulnerable, quiet wonder of those flowers says it all. ------- Keep seeing yourself getting better each day...keep dreaming new dreams ..planning new plans, creating your art work and new dances... -------
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June 8... (afternoon Italian time...) At the moment we don't have any news from the clinic. The day was so far up and down with the fever, and by tonight, Italian time, we going to know where the fever can possibly be originate. Still, Ja is doing the usual, eat, drink and listen relax music,... everything in small portions.. :)
Lines for Ja... Close your eyes and breathe in deep, there is a lot of positive healing energy being sent to you daily from many people. ------- I'm glad to hear Ja is improving daily. Bravo. ------- This is a really tough fight for Ja. Please send her a hug and all of our best wishes. -------
I'm off on Friday evening to pray with the
monks. I call it the divine circle of love and positive intention
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June 7... (pass midnight Italian time...) Time go slow but for sure good. Ja is feeling better everyday, and we too. Everything improves, the hope is coming back and we like to thank you to all the helpers worldwide that keep going non stop with us. Today, the Capilano College Singers from Vancouver, did the first show at Basilica di San Silvestro here in Rome. Directed by Lars Kaario, a friend of Ja's grandma. Lars like to come to Ja's clinic to sing life for her, but is no time for visitors just now, so, I (Pancho) visit them at the Basilica, and video few song. Later outside, they did a formation and sang again for Ja, sending als a big "Hi Ja". But my video camera have problems at the moment and I miss the songs.. :( Still, I save few pictures from the camera to show the moment they did it. Pictures click here Here are the videos from inside the Basilica. (compressed small to window media video format) Video 1 click here Video 2 click here Video 3 click here Video 4 click here Video 5 click here
Lines for Ja...
You as always reach out and touch me -no matter what
you are going through.. ------- TI INVIAMO UN ABBRACCIO FORTISSIMO!! UN AUGURIO SPECIALE DA TUTTI NOI!!! ------- namaste ja pace, i have two new paintings i would like to give you... -------
------- Yo estoy Segura de que todo lo que nos pasa en la vida tiene un sentido Mayor. tal vez no lo logremos comprender del todo, pero así todo tenemos que confiar, de hecho si no confiáramos no seguiríamos adelante.
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June 6... Ja has pass another day ok, yeah! ------- A Mandala for Ja by Sophia, Amanda, Sara and Karen click the Mandala
We all spent some time making the Mandala. Sophia did
the hearts and the
Lines for Ja... Every time I see the moon I will think of you there in Italy in the light of the same moon, all interconnected, sending you strength from this wide circle of love ------- Ja nos ha tocado el corazon e inspirado mundialmente. ------- Love and hugs from afar and not so far at all..... ------- Our thoughts and prayers and "warm fuzzies" continue to flow your way, Ja. Thanks for being such an inspiration to the rest of us
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June 5... (pass midnight Italian time...) June 5 is over in Rome, and we can said that Ja have a good day. We know by now that her improvement is on a rate of 30% everyday. This 30% sound like alot, but in cellules count, is very little and takes many day to reach normal point. So far, Ja and everyone is happy with the progress, and remember... "happy people can do everything"...... :):):)
Lines for Ja... Anyone who reads your story and sees what a beautiful person you are, would surely want to reach out... I bet you feel very loved the world over. ------- Just know how much your strength and spirit has touched and inspired so many. Think of you very often. May peace and wellness be yours. ------- Estamos con ustedes con nuestras plegarias. -------
...I have begun a 30 day fast for peace in the world,
and health for Ja.
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June 4... Ja feel the same, better, cosi cosi ( non so good, non so bad...:)... :) The roses from today, Pictures click here ( try a rose in your computer desktop )
Lines for Ja... ...to see how very many people over this small planet of ours have you dear Ja in their hearts. Wishing you all the joy and miracles you deserve, venceremos! ------- Yo tambien pense mucho en ustedes en la luna llena ------- I am thinking about all of you every day. I and friends of Ja are planning a party... We are going to bring instruments and play music in a field We are also going to do our hair in faux hawk (really big) and wear large shirts and tight pants (Ja styles). We will send pictures. Everyone here is thinking about you all the time. We can’t wait to see you all. ------- FUERZAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA
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June 3... ( late afternoon Italian time...) Rain in Rome. The sky cry and the roses love it... Ja is doing cosi cosi, come çi come ça, mas o menos, so so... No big differences from yesterday with the routine medications. The fever come back today; just now she is sleeping (Sal mention) and maybe help to cut the fever. Sal and Craig are positively remarking that Ja's health improves everyday a little beat. Lines for Ja... Dear Ja, you're surrounded by people who love you and, when it is needed, you also are able to find in yourself that vital, quiet spot of solitude that nourishes and liberates the spirit as well. ------- Our moon was a bit obscured last night, didn't matter though, because I thought of Ja and had seen the beautiful photos of your blue moon in Rome before heading for bed. ------- We keep cheering for you Ja, and all of you in Rome. ------- I will be praying for Ja's return to good, vibrant health and wish you all the very, very best. -------
Gracias por hacerme sentir parte activa de este
acontecimiento en la vida de la familia.
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June 2nd..June 2nd is the biggest Italian party: "The Republic Day". Ja's numbers are down. Platelets, plasma, white cell and blood are supplies trough the medical devices until Ja's own body start to produce everything. We don't going to have any result to next week. The fever is mild but not finish yet. We like to thank you to all the ones that has done few step into the moon dance in support of Ja. (Was a Pancho's idea. We know is not time to party, but is better to have a positive output.. ) We let know more about Ja, soon we can.
Lines for Ja... Thinking of you with so much love... and you will see it looking into the face of that big, blue, beautiful moon. ------- Dear Ja: While you have never met me, you have made a difference in my life. I would like to think that knowing what you are going through has made my troubles seem insignificant. ------- We’ll be sending positive energy, love and prayers from B.C, Alaska, Oregon and Vermont, through the blue moon to you. ------- ...you are so young Ja and have accomplished so much and have 'touched' so many hearts with your heart! ------- last night was a fundraiser......... there were east Indian girls dancing and one was smiling and singing as she danced and so full of love. she reminded us of Ja.....later when the dancing started we danced and danced for Ja.........we had the good fortune to dance to the full moon last night in honor of Ja, because as the mentor says, "when is the time to make joy? - - now! only now." Ja! so we danced and we danced to the full moon and later we went to the beach to watch the moonrise, it was big and orange and full of promise for health and good will. and we believe. we could feel the patience and love of Pancho and Sal waiting for the clouds to clear and the bright orange moon to come out in her glory. Ja! there are miracles afoot. be brave dear girl, we are all dancing for you. you have shown us beauty and spirit and joy, Ja! return to Ja, return to now. now is the time for life and miracles! we love you Ja!
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June 1st...11:30 PM Ja have a nice day, eat soup and relax...feels good We are back from the field... and here are the pictures before and when the moon show up at 11 pm behind the clouds ... Pictures click here 12:00 PM: we go back to the field to be with Ja and send our energy with the moon... 2:00 AM: Well we never make the campfire, but we get be in the parking lot, play some music and wish that Ja going to be good soon.
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June 1st...6:30 PM We are in the way to the field...
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June 1st... So many believes, so many languages and so many different ways to communicate... but only "ONE MOON" for everyone. And today "June 1st is Full Moon", this one call "Blue Moon".. have you hear saying: "The only happens on a blue moon...." or "once in a blue moon"... (maybe is not really the blue moon.. but we can called that) So, get your friend, your family, any one, go to the fields, the back yard, the Sea, the beach, a park, a house... and party for Ja, and make your wishes to the Moon, whatever wish you like, and send to Ja through the Moon waves, she might be at the window and watched with you... if you don't party, send the wishes any way..
How's everyone like the idea? if you like it....just do it. We going to do too! (with campfire or without.:)
*
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JA!
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The view from Ja's window +from inside Pictures click here and from the field click here
Hey lady in the box! -We love you! We just visited your site and saw the pix from the field! so wonderful! Just wanted to let you know that we are out there in the field too!! We have been praying and cheering for you often. Jonathan, Gabriela, Jake, and Sofia |
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hey just thinking about all of you sal pancho ja and the crew , as usual.. and wanted to say first of all i'm loving the daily updates i read it every day with panchos accent.. he he... Michelle
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This is Tsonoqkaw. She is the wild woman of the woods
The prayful dance energy of the Wild Woman of the Woods being released to You, dear Ja, and to all your beloved ones. Ed
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May 31... "DAY 21" ( late afternoon Italian time....) When I start to update day by day, was plan to update to the day plus 21, (today), because, today was plan for the doctors in the transplant protocol, to make the first test of bone marrow. Everything was anticipate because the fever, and by now, we don't really know what happens. So I guess, I need to keep the updates to the day we know for sure the result. Ja is very positive and now everything is focus into get her back into her dancing feet and healthy. I think that few more days in the same direction will do the work... :) The tests and numbers going up, the immune system increasing and start to reach the lowest level of safety body. and we all are here with the Go Ja GO!! GO Ja Go.... Lines for Ja... Ja is such a strong person and was so well prepared to go through this ordeal - I know that she can draw on all of that inner strength to get her through this. ------- Quien esté alla arriba, que se ponga las pilas! ------- Precious Ja, We wrap you in a blanket of love. May the rest of your healing journey be easy and smooth. -------
Just to let you know that MANY in Springfield, IL and
Park Ridge, IL are ------- Just sit tight, bite the bullet, and "good omens" will come! ------- Ja ,I see You coming through this in a rainbow of Light ........
i hear Sal's voice
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May 30... "DAY 20" ( late afternoon Italian time....) So far, everyday is a hard day for Ja. This morning, under anesthetic she have a surgery to reinstall the central line that was previously remove a cause of the infection, this is the line from where she receive the medication and transfusions. Everything was good, and now she is in her room slowly get it back in shape. Ja's own bone marrow that was transfused back to her on Monday, don't have start to show signs yet, but the white cell counts have increasing enough to start to bring down the infection, as well the water retention start to release. Craig and Sal, both amazing, doing an incredible job taking care of Ja on the 12 hours shift each one, comforting, helping, and keep and eye on the machines in the room that provide to Ja support. Lines for Ja... love from the "prayer team" in Vancouver , sending love love love... Ja, just know we are all thinking of you all the time. ------- The strength and love of life that you all have is being shared around the globe. And has gone around many times and is made its way back to you. This will give you the power to be . ------- Bueno, seguimos haciendo fuerza....decile a JA que somos varios los que la hemos elegido como nuestra "hija adoptiva". ------- Ja. La vida es un sueño...that is worth to be lived and understood.
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May 29... "DAY 19" ( morning Italian time....) Everybody on duty...
Evening... ( Italian time ) Ja is Ok today. Ok is like the fever is very low, and in general more calm. Yesterday, around 4 pm, the Doctors team had decide to transfuse back to Ja her own bone marrow, because at the stage she was without any immune system, and impossible to stop the infection and fever. A little of the history: On Friday 25, the test of bone-marrow from Ja, has showing that was 100% from Sal. On Monday 28, after the 2 days with fever and infection, Sal's bone marrow was down to 40%. Today, the critical situation is under control, and we wait for Ja's own bone marrow to grow back and help against the infection. (approximately takes 48 hours) Considering few factors, Ja's immune system was in "0"(cero), and today she still in "0" (cero). She still receiving the same support medication, blood, platelets, plasma and more, and we don't know yet how the two bone marrows going to react, like accept or reject. Is to early to diagnosis or have numbers to tell what is going on, but we know by now that Ja is Ok and relax, and the doctors too... Hope everybody understand why I wrote this morning: "Everybody on duty" (the picture with the child and the dog praying was send by Val from Seattle)
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May 28... "DAY 18" ( morning Italian time....) Monday news: Still early for test results, also after the week-end, takes sometime to doctors and nurses to settle down in their routines, but so far everyone was visiting Ja, and taken all the morning test and proves, soon we going to know more about Jas condition in general. We know that she do retain liquids, and the infection still there, not so hard like last week. For news, is not so bad news...:):) Thank you again for all the e-mails and prayers in support that arrived from everywhere to us. We consider this a good omen too.
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May 27... "DAY 17" ( morning Italian time....) Sunday news: Jas condition improves everyday. New inputs in the diet and gentile dance moves helps physically and mentally. The healing process can't be accelerate, but Ja going to try anyway. (Pass midnight Italian time...) At this point, the city and most of Rome is calm. So was Jas room last time we talk, 10 pm. But the afternoon was again very busy between the fever and medication, nurses and doctors in and out, looks like for Ja to take a "siesta" is almost impossible during the day, and also in the night, because all the medicines she take a different hours. Sometime the same happens with the food. Some medications must be taken with food, others far apart. Plasma and Platelet can't wait, so if platelet or plasma are transfusing and the lunch or dinner arrive, Ja can't eat, and when they finish the transfusion, the food is cold... In this week, we expect some news and changes, but so far, still a long way to go. From today, the same flowers., just a little older...:) Pictures click here
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May 26... "DAY 16" ( Early morning Italian time....) Saturday news: Last night and now Ja has some fever. She still receiving platelets, plasma, blood transfusion and medication, those are the mainly cause of the fever, and for few hours is necessary to keep down applying ice bags on Ja. This can be done thank you to Sal's love and stamina. She is the one by Ja's bed doing the work patiently. Love you Mom too!! (Pass midnight Italian time...) A nice history for the end of the day. Ja doing better, walking and exercise breathing, and I, (Pancho) looking for a good "omen", in the green field outside the clinic, I find this one among thousands of clovers... ...
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May 25... "DAY 15" ( morning Italian time....) We are once again in the waiting time... Just now ( 10 am) the doctors are in the process of extracting some bone-marrow samples to find out what is going on inside of Ja's body... I guess we like to know too. Update 11 am: Sal call, the extraction is done, we going to know the results by Monday. shuuuu...(air out) call for a break... Noon to evening... Written by Craig: I just left the hospital after having a great visit with Ja. She was up out of bed talking, laughing, and eating... what a rollercoaster day.. :):)
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May 24... "DAY 14" Back on track, day 14 was another one of those long days. Ups and down, a lot of tests for Ja, back pain, fever, and then few long periods with nothing, very relaxed and listen to music... This is all part of the process Ja said, and counts the days too. "The flowers from today".. Pictures click here
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May 23... "DAY 13" ( noon Italian time....) Ja has improved a lot from yesterday, "a lot" meaning: better... :) but still recuperating. (Pancho) I was driving this morning in rush hour, feeling like people feel in rush hour, especially when you drive some friends to the train station and you don't think you are going to make it in time. There was a scooter in front of us and the driver had this logo written on his T-shirt...
this really changed my day...hope that it changes yours too :) Ja have a print of the happy people in her room, and start to kick in...:)
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May 22... "DAY 12" ( morning Italian time....) The fever in Ja persists. For some good news, this is not a good one. Hope during today it can be under control. The fever is not the best for the whole system, and like any cold or fever, the body can learn to fight to get back in shape, but it always takes a few days for this to happen...and for us, this waiting time feels like an eternity... Again, thank you to everyone for the steady support and prayers... Ja is very happy to know that you all are there somewhere... Early Afternoon... The team of Doctors from the clinic has traced the cause of the fever in Ja, they make some changes in her medication therapy and protocol, and Ja starts to feel a little better. Keep your fingers crossed, the high-tech medicines help a lot... :)
Evening... ( Italian time ) Was a long day... In the middle of the afternoon, Ja was taken into surgery to remove her central line which was infected and had been the cause of most of the fever and head ache problems, after that, it was like the whole world changed orbit (mentioned Sal...) Also she started another anti-anti-anti like anti some something, that helped a lot. By now, maybe she is sleeping and hopefully very relaxed. It is so nice to hear, (she mentioned after) that prayers have arrived to Rome at some moment, because she feels it. Sal was with Ja all the time and we; Craig, Ves and me, ( Pancho ), concentrate in the garden arrangement during the waiting time, and after Ja was back at her room, the whole house mellowed down... feels very good See you tomorrow... hugs to every reader and reader's friends...
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May 21... "DAY 11" ( morning Italian time....) The fever is moving up and down, and because Ja's immune system still very low, it this not so easy to get it better overnight. Just now in Crescent Beach, people dance and party for Ja, and we are waiting for the healing wave from the dance to arrive in Rome any minute ...Thank you guys! Update: We received the first call ( 2 AM in Vancouver) from Sal's mom Joan, about the dance, "beautiful, magic, amazing..."... the wave is here :) Harriet send us the moment in these Pictures click here ------- From our garden today.... Pictures click here
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May 20... "DAY 10" (morning Italian time....) Ja's fever break down and start to feel better. Afternoon... Ja's fever come back... The family left today direction Naples, and before they departed, they drove to the field at the clinic and waved to Ja, and Ja waved from her window, what a beautiful moment. Pictures click here
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* Also tonight in Canada * Dance Benefit for Ja at Camp Alexandra in Crescent Beach * Live music with 3 bands: O'Hara Lane, MURP!, and In Harmony All Stars. * May 20 - 8 PM - Entree by Donation - Silent Auction. Don't miss it, it sure to be a fun dance. |
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May 19... "DAY 9" Day nine, Ja's fever still there. She is receiving what she needs, like platelets, antibiotics and other medications to preventing complications. From the doctor and nurses, everything looks ok, the fever is part of the post-transplant, almost inevitable because the suppressed immune system. (Pass midnight Italian time...) Craig stayed with Ja for the day and we, Pancho, Sal, Florencia, Soledad, Raul and Coca have visited the famous Sistine Chapel for first time, amazing!... like most places in Rome.. Pictures are in May 18, next below...
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May 18... "DAY 8" (noon Italian time...) The calm before the storm...Ja wake up with fever today, not so much, but together with a little headache didn't make such a good day. What really made a difference for today, was the arrival in Rome of Pancho's nieces, Maria Florencia and Maria Soledad, together with their father Raul and aunt Coca. This was a big surprise as they came from Argentina, and is one very special-special time for all of us. The last time we have been together, was 7 years ago in Argentina. Now in Rome. Can't describe the feeling with words. (Pass midnight Italian time...) We just finish our gig at El Tremendo, Spanish restaurant in Rome, together with Rickey Man on accordion. Jim and Helga also played few tunes on accordion and violin. Pictures click here Pancho's family was at the restaurant, and also Lana, Rickey's wife. So we have a historical music and family night in Rome. Pictures click here from Family, friends and music..
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May 17... "DAY 7" (past midnight Italian time...) Day 7 was the most relaxed day Ja have from the time before and after the transplant. She was painting, playing drum, listening to music, writing lyrics for an original song from her and Craig, talked on the phone with friends from Vancouver and Rome, and finally she mentioned that the day was too short to do everything she would like to do. Ja still very Ja Jim and Helga arrived in Rome today, musicians friends from Vancouver via Germany, and Rickey Man and Lana via London. Tomorrow night, we, Pancho, Sal and them are going to play at a Spanish Restaurant El Tremendo in the Vatican area. Pictures click here and keep tuning in with Rome Update.. :)
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May 16... "DAY 6" (midnight Italian time...) Day 6 is over. Yeah!! Day by day is definitely our reality. Ja doing good. The recuperation is on the way. Today we give to Ja a Darbuka, a hand drum percussion from Egypt. In a few more days we bring the Bass amp, Bass, accordion and guitar also....We like to see how much the nurses and doctors can handle.. :):)
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May 15... "DAY 5" (evening Italian time....) Day 5 is almost over and nothing major. Ja's hair is starting to fall out which is a natural consequence of chemotherapy. Her counts continue to drop but we are sure there are lots of new cells growing. Craig and Ja have been watching lots of nature programs, making music together and being very creative.
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May 14... "DAY 4" (morning Italian time....) Another night for Ja in the count plus days and she had a nice sleep. Count plus days, count minus cells, platelets and everything. Ja's immune system is still going down and being suppressed in order to let Sal's bone marrow settle down and start to grow. Sounds complicated but not for the team of doctors at the clinic that say everything looks and is working according to program. We just received an e-mail about a new fund-raiser for Ja on the 20th of May in Crescent Beach, White Rock area in B.C., Canada. It is a beautiful festival with a craft market during the day and a dance benefit for Ja in the night. The information from The "NOW" News paper from Surrey and Pictures click here
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May 13... "DAY 3" MOTHERS DAY..... Ja in the count plus days feel better and better, well nothing like she can jump out the bed and start to dance... :), but enough to make a handcrafted bracelet for Sal on mother's day and to watch some movies. She mentioned, it is kind of like a dance audition, first you make all these rehearsals and preparations, then you do the presentation, and then, you must wait...
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May 12... "DAY 2" (morning Italian time....) Second night for Ja in the count plus days, and she feels good. But, this is the start of another phase of the transplant program. Her immune system is still going down for few more days. Now, she is taking preventive medicines, antibiotics, anti-acids and food supplements. - - - - - - - - - Evening Italian time... Ja had a very nice time for the rest of the day, and she called me ( Pancho ) to tell you that I can say, that she feels good but not perfectly good and is very happy to be finished with chemo. One of the rules of the clinic during the transplant process, is that one of us has to be with Ja all the time. Hugs to everyone... and "Happy Mothers Day" ( for tomorrow the 13 )
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May 11... "DAY 1" (morning Italian time....) Ja had her first night with the new bone marrow and had a good sleep. Now we count plus 1, 2, 3..etc etc to day 20, to know if the new bone marrow is accepted by Ja's body, and then we count the days to be healthy enough to leave the isolation room... We would like to thank everyone that has sent e-mails and called in support, and has been sharing this magic moment with us.
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May 10... "DAY 0" (afternoon Italian time....) The transplant was done!! Yujuuuuuu!! Ja was in perfect condition, the infusion of the bone marrow and stem cells started at 12:36 PM, in a sequence of 8 bags, and was finished at 14:45... Fantastic!! Doctors and nurses are very happy with the results, everything went nice and smooth. A good friend wrote to us... "The bone marrow is being bathed by Golden Light" We are all very happy. From today in the field... Pictures click here
Written by Sal When Pancho and the boys called Ja and I and told us to look out the window, it was beautiful! Ja stood on a chair in her room and cracked a huge smile as she saw her guys out there. So then we wrote our message on the window with medical tape back to them. The room was filled with love, we had music on and it felt very special. After all the marrow was infused, the nurse unhooked some her medications so that Ja could walk to the window and waved to the boys. They jumped up and down and ran circles around the heart and it was truly a celebration. They had placed a basket of fruit in the middle of the heart in honor of Ja and had a mini feast. We were filled with emotion and were so happy to be altogether. and from inside ja's room Pictures click here
May 10... "DAY 0" Today, around 1 pm Italian time, is the day when the bone marrow from Sal, is going to be transfused into Ja. The point most important has arrived... Sal will be with Ja inside the room, (imagine from inside of the window..) and we, ( Pancho, Craig and Ves) are going to sit outside in the green field, the closest we can, waiting, relaxing, celebrating, and anybody can join us outside in the field.. if you look through Ja's window. This is an incredible moment, I feel a very strong energy about everything when I write now, ( it is 4 AM on May 10, Italian time). ( Pancho) GOOD LUCK JA ... WE ALL LOV' U
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May 9... "DAY ONE"
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May 8... "DAY TWO" The good news for today is... that today is the last day of chemo for Ja. Tomorrow she has only some medications and Thursday the 10th is the day when they transfuse the bone marrow and stem cells... Keep your fingers +... (News at 11 AM... Italian time :))
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May 7... "DAY THREE" Everything looks good and close to "Day 0", Ja has 3 more days of chemo and then the transplant is on May 10. Then it takes at least 20 days to know if the new marrow is growing, the room is filled with lights and is vibrating of Ja's energy. And today is sunny.. Pictures click here (News at 11 AM...:))
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May 6... "DAY FOUR" Good day for Ja!! yahhhh.. And today rain.. Pictures click here
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May 5... "DAY FIVE" Day 5 still going, with a happy and very relaxed Ja. New chemo and more changes, but so far...so good.. ( News at 3 PM Italian time on Saturday May 5..:))
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May 4... "DAY SIX" Day 6, was one of those calm days. Ja had a few tests and everything looks good. fiuuuw..... We are already on day 5....
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May 3... "DAY SEVEN" Day 7, was one of those hard days. The medication was strong for Ja. She had headaches again and discomfort for most of the day. She started to feel better by the evening. This whole thing is not a joke. Time is going fast but slow at the same time. We sterilize anything and everything in a bath of alcohol and put it all in sealed bags before entering the room. Between us, (Craig, Sal, Pancho) we do 7 or 12 or 16 hours in Ja's room with Ja, helping and sharing time together, listening to music, watching TV, reading some books. Sometimes we look out the window at the mountains and enjoy the beauty of the scenery and the big open field. We are already on day 6.... ( News at 3 Am Italian time on Friday May 4..:))
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May 2nd... "DAY EIGHT" Today Ja is doing good and her body is adjusting to the chemo ok. Her diet is pretty much restricted to rice, chicken, mashed potatoes, dried toast, black tea and not much else. (News at 11 AM...:)) The rest of the day was calm, relaxing and listened to some music. By now she feels good and happy.( News at 10 PM...:)) ( Day 9 passed very calm )
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May 1st... "DAY NINE" Day 10 is over, yippy!!! Ready inside Day 9. It is a beautiful day and Ja feels great... Rain in the afternoon, but Ja still feels good. In Italy May 1st is a big happening, a national holiday with picnics, concerts, markets and festivals everywhere... pity the rain stopped some of the events, but not indoors, Italy is feasting and partying... :)
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April 30th..."DAY TEN" Day 10, strong chemo and not easy, nausea and headaches for Ja, but she felt better by the evening and had a good sleep.
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April 29th ... A day of relax from medications and ready for the 10 day count down...
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April 28th evening...
Ja cut her own hair and prepares to change rooms.
The haircut went very well and she has saved her golden locks for future projects
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April 28th morning... Kaia left this morning back to Vancouver after a great visit.
from Kaia's camera during the Rome around... Pictures Click here
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Take from our garden on April 28, 2007 - More roses Pictures Click here (we have one hundred one roses and more to come...) |
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April 26th... The progress with Ja is excellent, is a very fragile moment as she approaches the 29th, the day to move into complete isolation and start the strongest Chemo for 10 days and the count down for the insertion of the bone marrow cells..., reality shocks us a little bit more but we keep going... From today walking to the clinic... Pictures click here
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April 19th... Ja has to stay from now on in the clinic, because her counts are very low, and has been receiving alots of preventive medications. Things are going as planned t it is safer for her to be under medical control 24/7. We are taking shifts being with her. At least one of us can stay with her all the time. Monday 23, she starts to get another chemo, and on the 29th she goes into the "box". Here is the helping team... Pictures click here It this no internet in the room, so the reply e-mails from Ja are on hold for one or two more weeks, and soon she going to have a direct phone line to get in touch with the world :) Ja said "Hiiii" to everyone
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April 17... Ja take a tour to the Zoo in Rome... Pictures click here |
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April 16... How are you doing...? and how are things are going here in Italy...? We have never forgotten all the wonderful friends who have helped us to get here. Already, 6 months in Rome and are finally near to doing the actual transplant. It has taken a lot more time and preparation than we anticipated. Ja has almost finished the 2 months of chemo suppressing her immune system and will be ready for the next part. On April 29th she goes in the clinic for two months of isolation and gets the heavy duty doses of chemo for 10 days after which she will receive the new bone marrow cells and the stem cells and wait for them to start to grow.
Ja keeps smiling and still living life to the fullest.
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April 12... From Pancho, Window-shopping in Rome Pictures click here |
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April 8 - Easter Sunday... "Pascua de Resurrezione" New pictures from today, of course, whatever you take a picture of in Rome looks amazing, intriguing, architectural...etc, etc...always art around. So, I (Pancho) and Ves, we took the bus to this big Flea Market, "Porta Portesse", the rest of the family join us later and I just shoot pictures non stop on the bus and in the market, hope you can feel like you are walking and driving around with us, see Ja on Easter Sunday, and get a fresh glance at Rome... today :):) Pictures click here
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April 6 - We have discover in our backyard the Lake Albano... Pictures click here
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March 31th- A visit to Pancho's Grandparents' hometown, "Orsogna". Also Ortondo, the nearest beach from Orsogna (10 Km) on the east side of Roma, close to Pescara by the Adriatic Sea. Pictures click here if this link is too slow or doesn't open Try here or Ja's Pictures slide show with the Orsogna's pictures and music from Pancho and Sal Window Media 23 MB click here /// Quick Time 22 MB click here
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March 28th- Sal writes: Time is flying by so fast. Ja has already done 36 days of the first part of the Protocol and by the end of April we will be ready to start the next part. The 26th and 27th, I did one more apheresis and we now have more than enough stem cells in the bank for Ja. The process was easier after doing it for the 3rd time. The doctor was telling me how the blood from your entire body goes through the machine 2 times in the 5 hours each day. Because we are at the hospital 3-5 times a week, the patients, families, nurses and doctors have become our extended family. We share stories, culture, and lots of laughter on a daily basis. Our Italian skills have improved considerably in the last 5 months. With patients from all over the world, Italian is the language we can all communicate with each other. It has been a very rainy spring here so we are feeling quite at home. Tons of wild flowers have blossomed in the last two weeks brightening up our walks to and from the hospital... simple things in nature we truly cherish. Every day we feel very special to be receiving e-mails, phone calls, letters and post cards with positive energy and prayers from all over. Thank you very much, for understanding the moment we are living now.
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March 26th
Michelle left to France after been with us in Rome for few days... Pictures click here |
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March 25th Our friends Rock and his wife Betty hosted another amazing evening of food, fun and music on Sunday for Ja and once again we are forever grateful for all the talented performers, guests and organizers who made it a night to be remembered. (info)
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March 19th
We enjoyed a cappuccino and delicious pizza
together.
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March 15- The sun is shining brightly and it is very warm in Rome. Ja had a day off from the hospital and made a day trip to the beach in Anzio, just outside of Rome. They took a picnic and a soccer ball and had a very relaxing day. There was a circus in the town and so they went and really enjoyed the show and being able to hang out with the tigers, monkeys and elephants during the break.
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March 13- Today Ja’s white blood cells were a bit too low so she has stopped the chemo for a couple of days in order to build them up again. The chemo was working a bit too good. I think when she resumes therapy the dose will by reduced. Our main concern is to keep her healthy.
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March 12- Sal writes...Hi everyone; here we are almost finishing the 3rd week of chemo. Ja is staying well, her hemoglobin is a bit low and she has had a bit of a rash but otherwise okay. We have started to clean the house and bleach has become our best friend. Everyone has been fantastic, scrubbing every little corner.
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March 9th The event at the Peruvian Club on March 8th was very nice. A lot of people came, including a group of nurses from the clinic with their partners, it was great to see them out of their work attire. Everyone ate, danced and had a lot of fun. I always laugh because my name is eternally “Mama” to them. The musicians were all outstanding, plus our dear friend Edie visited us for few days and did a beautiful flamenco dance at the benefit. To see the video click here
Few Edie's in a window media slide with Pancho and Sal song Pictures Click here (17 MB )
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March 8th We are so happy to welcome “Sofia”;
Jonathan and Gabriel’s daughter is born in Vancouver giving new meaning to International Woman’s Day. April 15... Sofia is now 1 month and halve...
...happy to have a "Papa photographer :) " and Sofia's latest... on May 6
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March 7th,2007 Sal writes: I know many of you are checking the site for the news. We have had a very busy time. Pancho and I never expected to lose his mom and my dad in the same week. We miss them dearly and know we hope that their spirits are here in Rome watching over us and their beloved grand-daughter. Ja is on day 14 of her chemo therapy to suppress her immune system. Everything is working according to plan and she is feeling good. She has had a central line put in which was a bit of a challenge and takes time to get used to. We go to the hospital three times a week for tests, medication and to receive blood transfusions. The nurses are all very caring and take good care of us. If all goes as planned Ja will start the 10 day count down and the serious chemo around the 3rd week of April. I will be doing one more round of the stem cell aphaeresis to be sure we have more than enough cells. This will be my third time and I feel like a pro now. Pancho, Ves and I have been doing some markets. On the last week-end in February we went to an outstanding festival in a small mountain town Poggio Mirteto. It was extraordinary. There were more than 12 bands playing in the street, street artists everywhere and thousands of people. It was a grand experience. The Italians loved Ves’ wire creations. He received many compliments and sold some of his pieces. On Thursday, International Women’s Day we will be having an event at the Peruvian Club “El Tumi”. Our dear friend, Edie has arrived from Vancouver for a short visit and will be dancing flamenco at the benefit plus four other groups will be performing. We know it will be another special evening and are looking forward to it. The Peruvian community has been so supportive and they are helping Pancho and me to find gigs with our musical duo. Back home in Vancouver the Dolce Vita Fundraiser was a very magical night full of love. We have heard so much incredible feedback and have seen the pictures and it looked like an awesome night. We thank you all for making the event such a success and want you all to know that you have made a big difference in our lives. Ja was so happy, her laughter echoed throughout the house as she spoke with many of you that very evening. Your unending love and support is fueling us daily on this journey.
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March 1,2007 Nelida Pace, Pancho's Mom has left us at the age of 85. Another departure from our family. We hope that eternal peace is with her, and she receives our love and prayers.
Pancho's Mom and Dad in 1942
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February 28,2007 The Azure Fund Raiser for Ja Edie from Edie's Hats at the benefit
listen about click here
Ja was at the benefit with this message....
click here ( 23 MB Window Media PC ) click here ( 6 MB Quick Time for Mac & PC)
More from the Azure fundraiser comming soon...
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February 25,2007 To many of the readers of Rome Update, related to Ja and Sal family, we must announce the loss of father and grand-father Ron Coutts.
We will miss him very much. We pray that his soul is in a better, happier and more peaceful place. |
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February 21,2007 Today, Ja starts the Chemotherapy...
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February 17,2007 Hi everybody, we had one more fund-raiser for Ja, this one was at the dance school Olimpo del Liscio, where Ja takes many classes, around 400 people showed up, and it was a beautiful evening of Salsa. The school presented a couple of dances, and Pancho and Sal played a few of those Latino songs.
Click here if you like to see the videos
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February 12,2007 Ja and me (Pancho), wait to 3 AM in Rome to see CBC online and video tape from the computer screen the CBC TV News in Vancouver with the interview with Ja and Jonathan Cruz about the next fundraiser. ( The video is not as good that the real CBC, but we have put online few hours after and we are in the other side...
To see,
or
Click here Quick Time - Mac
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February 7,2007
Time really flies and we cannot believe we
have been here for 4 months already!
On Monday and Tuesday we are crossing our
fingers that we will get the remaining stem cells needed to get started
with Ja on the next step.
To check out the flyer with all the info...
Click here
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FEBRUARY 16,2007 Benefit Fund Raiser for Ja at the dance school in Rome Olimpo del Liscio (Poster)
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FEBRUARY 28,2007 In Vancouver, an incredible night of live music and dance at the Azure Lounge and Grill at the Plaza of Nations is being organized in support of Ja. Follow this link for more information: La Dolce Vita
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MARCH 8,2007: "International Women's Day" Benefit Fund Raiser for Ja at the Peruvian Club "El Tumi" in Rome (Poster)
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January 13, 2007: Peter in Rome...
Peter was in Rome to visit us, and traveling around with Craig and Ja, also film Jas dance at the benefit in Ostia, (the one you can see in YouTube below), and few pictures from his trip in Rome, Sicily and Milan Pictures click here
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JANUARY 13, 2007: Benefit Fund Raiser for Ja in Lido de Ostia (Rome) at Nino Manfredi Theater See Poster Italian News Paper from Ostia click here and here are: Ja's video from her dance at the fundraiser with Craig on Guitar, Rene on percussion Cajon and Pancho on quena bamboo flute. "CLICK HERE" (Windows Media for PC) "CLICK HERE" ( Quick Time edited version for Mac) "CLICK HERE" (quick time video (1camera) for Mac) or YOU TUBE
From the same fund raiser, New Video add on February 16, 2007 "Ojos que No ven" Click here (window media) or see in YouTube....
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JANUARY 10, 2007: Pancho writes... Amigos, about everything so far.... I Love Rome. What a experience to walk around thousands of years of history, in the present, to walk around thousands of cars and people moving in every direction day and night. The reality has arrived to us, we are in Rome and it is not so simple to jump on a plane and get started the next day at the same level we had in Vancouver. We have met people of many different nationalities, and as soon as they know our reason for being in Italy, they go out of their way to help us, and support Ja to try to finish the transplant plan we began one year ago in Vancouver. Friends from Canada, US and Italy have visited us during this period, and it feels very good to have company in the moment we are living now. The communication in general; e-mail, web pages, computer talking programs, phones, etc etc, make distances disappear in seconds and connect us with the rest of the world. We have been writing e-mails but is hard to write to everyone we know, so we strongly encourage anyone who would like to get in touch with us to e-mail us, we always like to reply. We have a few more events planned in the future, and we will post here or in Ja's event page. I would like to personally thank everyone for everything. Pancho
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JANUARY 3, 2007: CBC 690 AM Radio Vancouver direct live interview with Ja, hosted by Priya on the program "On the Coast" by Shana Hugh CBC Radio Vancouver click here to listen or alternative: with window media
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Bill visited Rome and left us with few pictures for this Slide Show Pictures -Click here-
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JANUARY 3, 2007: We are happy to have survived New Years in Rome. Just before the stroke of midnight the fireworks begin and are non-stop for about an hour. There is not a car in the street and the skies are lit up in every direction. We stood on our roof in awe not believing our eyes. The Italians truly start the year with a bang! We heard that in Naples everyone throws out their old stuff including furniture, out the window, so not a soul risks their life walking in the streets after the clock strikes 12. We thought we would take a leisurely drive into town after the fireworks and realized we were not alone and that every other Roman had the same idea. It was like rush hour at 2 in the morning! Never the less we are content to be here and all made our New Year wishes and resolutions for 2007. On January 1, we made lentil soup as is the tradition here in Italy, they believe that by eating lentils on the first day of the year you will have good fortune for the rest of the year. On January 2, we played at a local pub and it was a lot of fun. Ja brought her entire dance class to cheer us on. Our friend, Bill was here and played lead guitar with us. It was a great experience for our first gig in a pub in Rome and we passed the test. On January 3, we were very excited to hear Ja through our computer as she was doing the live interview with CBC Radio 1:30 AM here. Vancouver rocks and continues to support us miles away. We feel very loved and are proud to be part of a community with such a big heart.
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NEW YEAR 2007!!! Wish the best to everyone in the whole world...
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DECEMBER 30, 2006 Sal writes We now know that we will be here for at least a year because the whole process takes time and we have to be patient. We almost have all my stem cells, next aphaeresis is planned for January 29/30 and then we will be ready for Ja to start chemo for 60 days in February and March. Ja will take 2 kinds of chemo low dose and then she will do 12 days of intense chemo and then the bone marrow will be infused. She will go into strict isolation for about 2 months in the hospital and if all goes well, she comes home in Rome for about 3 months to make sure the marrow grows successfully... And so it goes, we are here living the dream as a reality thanks to our army of friends like all of you who have supported us! We are confident that all will go well and we are in good hands. Lo is doing great. He is doing his courses through long distance . He is playing the guitar everyday and is learning how to cook. He is able to go out anywhere in Rome, no age restriction so he is very happy and has a great time. Ja is very positive keeping busy painting and dancing between hospital appointments. She is very focused and remains strong. Pancho and I are trying to network. Like they say "Rome wasn't built in day" We have our first gig at a pub on Tuesday January 2nd, and we are planning a fundraiser on the 13th of January at a theatre in Rome. The sun always shines here so that keeps our spirits up...We plan to have the biggest party when we get back! We wish you all love, health, good food, good fortune and lots of laughter in 2007... Big hugs from all of us to all of you.. Sal, Pancho, Ja, Craig and Lo
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December 18th, 2006 A small photo slide show from Marco. Pictures click here
Music by Pancho& Sal (copyright Marco Ivarsson,2006)
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December 12 th, 2006
Andrea visit us in December and from her camera Pictures click here
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December 8th, 2006 A treat from Craig... "The Pope in Rome" (Copyrigth Craig Trudeau 2006)
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December 8th, 2006
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December 1, 2006 CHANNEL 10 with Tonino Colloca on Lido Di Ostia - ROMA
Rome continues to have good weather, and we have made our first step towards another Ja Fund Raiser, to be organized here in Italy with new friends. The presentation was on The Tonino Colloca TV talk show, where we played a couple of songs, and talked about Thalassemia with Doctor Pietro Sodani from the IME, (Instituto Mediterraneo of Ematologie where the transplant will take place). We have few pictures in a slide show here: Pictures PHOTO-SLIDE CANNEL 10 TV
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November 24,2006 We found a new link for anyone that would like to understand what is going to happen now in Italy. Read here: BONE MARROW TRANSPLANT
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November 22,2006 Ja is back from being overnight in the hospital after receiving her bone marrow extraction, (done for future reserve), it was successful but a bit painful and so she is still in the process of recuperation. She received another blood transfusion and is almost as good as new. She hopes for a speedy recovery so she can get back to dance classes by next Monday (A dance school near our house has adopted Ja and that's where she hangs out in between hospital appointments). The food wasn't too bad and they even feed Sal. The nurses are very beautiful, fun and loving. We teach them English and they help us with our Italian.
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December 5th,2006 Sal will undergo this same process of bone marrow extraction. Sal is glad to find out all the details from Ja and know what she will be in for. The stem cells process is rescheduled for Dec 18th. We cross our fingers that all goes well. We -Pancho and Sal- are going to Perform on Monday 27th on Channel 10 TV in Ostia near Rome. We are going to be interviewed, play a couple of songs and promote a fundraiser that new friends in Italy are going to organize for Ja. We still have not arrived to our money goal, but we keep trying and thank you everybody world wide for the constant help and support. We will start soon to write some of the anecdotes and best moments in Vancouver during all the fundraisers for Ja.
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November 13,2006 Today Ja have her first blood transfusion in Italy. We are going to the next level with the transplant. Nov 22 they will take out Jas marrow to store for back up, and then if all goes well at the beginning of December they will start to taking a few million stem cells from Sal. It is quite the process and takes a few sessions of up to 7 hours at a time. They store all this along with the bone marrow and then the time comes to start Chemo for 60 days. We don't know exactly when, but we imagine in January as each step takes sometime. We are happy to be starting and have somewhat of an idea of what we are in for.
Sal Pancho Ja Craig and Lo
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November 8,2006 Exactly one month in Rome...can't believe how much we walk around town in one month. Still, this city is big and it is going to take time to cover everything. The news from the clinic does not arrive so fast. We wait and the days are long, sometimes very intensive, sometimes fun. Where we are, most of the food, veggies, bread, meat and fruits are very fresh and make Italy live up to the reputation that the food is good. A small Pictures slideshow just for fun.... click here for ~small version 2 MB ~ click here for ~medium version 7 MB~
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November 2,2006 Yeah...back on track, our internet and home phone is working
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October 19, 2006... We still in Rome, we have rented a house, feels very good and we more confident about everything, we meet the doctors at the policlinic and start the preliminary tests. Comunication is slow, our computer crash 3 days after arrive, ours whole e-mail list is gone, next day our cell phone crash also, and our phone book is gone too. We waiting for our back up left at home arrive to us, so sorry if we don't have contact many of you so far.
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October 11, 2006 ... We are in Rome!! Need few more days to update our web page, everything works perfect. Write to Ja on the Blog, http://japace.blogspot.com/
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If you like to call us, e-mail us for have the number, also you can find us in Skype under the name Francisco Pace
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Once upon a time.... Rome
was Always nice to see the old Rome Pictures click here |
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Visitors to this page can see that the energy of Ja has followed us all the way to Rome, as new friends join us in the spiritual and economical crusade. If you write to us, or have any questions, we will answer you personally ( e-mail ) Note: if you have already visited this page, scroll again as we add new material all the time, and for the latest event, Ja's Fundraiser
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To Contact us with
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Browse by month
2007: August / July / June / May / April / March / February / January / 2006: December / November / October / All months together |
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| Home / Thalassemia / About Ja / Fund-Raisers / Events / Guestbook / Donations / Videos / Gallery / Press Review / Translator / E-Mail | ||
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Photo April 15/07
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